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EN
The article lists the most important and most frequently used quality of life questionnaires for assessing children with headaches and presents the concept and definition of quality of life. Quality of life questionnaires can be not only a helpful tool in the daily practice of a pediatric neurologist, but can also be used to assess the effectiveness of the new analgesic treatment introduced. This article describes and discusses the results of studies in children with headaches using the PedMIDAS, QLH-Y, PedsQL and CBCL questionnaires.
PL
W artykule wymieniono najważniejsze i najczęściej używane kwestionariusze jakości życia do oceny dzieci z bólami głowy oraz przedstawiono koncepcję i definicję jakości życia. Kwestionariusze jakości życia mogą być pomocnym narzędziem w codziennej praktyce neurologa dziecięcego, mogą także służyć do oceny skuteczności wprowadzonego nowego leczenia przeciwbólowego. W artykule opisano i omówiono wyniki badań u dzieci z bólami głowy przy pomocy kwestionariuszy PedMIDAS, QLH-Y, PedsQL i CBCL.
EN
Introduction. Social knowledge about epilepsy has significant influence on shaping attitudes towards people with this disorder. Aim. The aim of the article was to find out an answer to the following question: How does the level of knowledge and perceiving people with epilepsy differ across societies of different countries? Material and methods. We evaluated 30 publications published between 2000 and 2013 on measuring the knowledge about epilepsy and psycho-social functioning of people with epilepsy. The articles were divided into five groups (including five continents): Europe-14 articles: six from Poland and eight from other countries, one from New Zealand, five from America, six from Asia and four from Africa. Discussion and conclusions. Despite widespread occurrence of the disorder in the world, the level of knowledge about epilepsy is low. Most authors, but also respondents, still postulate the necessity to introduce education on the matter to various age groups. The best form of communication used by the respondents is the media.
EN
Aim The specifics of progressive course of the disease leads to the development of functional dependence which contributes to later disability, significantly influences quality of life. The goal of the research described here was to determine the relationship between the functioning of patients treated with hemodialysis and selected socio-demographic factors and quality of life. Material and methods The research included 100 patients in the range 20-90 years of age who were being treated with hemodialysis in a renal replacement facility in the area of western Poland. The average age for the entire group was 59.5±14.4 years of age. The average time spent on dialysis for the group was 44.7 ± 48.6 months. In order to evaluate patients’ functional status the Barthel Index, Lawton’s IADL and the Karnofsky Performance Status Scale were used. In order to evaluate QOL, the multidimensional instrument – the Health Questionnaire Specific for ESRD was used. Results Using the Spearman coefficient correlation moderate and strong correlations were found between particular sub-scales Health Questionnaire Specific for ESRD and functional capacity. There was no statistically significant dependence between the length of renal-replacement therapy and particular scales on the Parfrey et al Health Questionnaire as well as the functional capacity of patients. Conclusions Demographic variables, especially sex and age, and to a lesser degree educational level and marital status have an influence on the results of the Health Questionnaire Specific for ESRD. Activity levels had a signficant influence on the results in the area of QOL
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