Oczekiwania i potrzeby chorych w zakresie leczenia stwardnienia rozsianego a wyniki badania BENEFIT 11

• Authors: Andrzej Potemkowski

Title variants

EN

Expectations and needs of patients concerning the treatment of multiple sclerosis and the results of the BENEFIT 11 study

• Languages of publication: EN PL

Abstracts

EN

The expectations and needs of patients concerning the treatment of multiple sclerosis focus on the improvement of chances for the pursuit of their life goals. The contemporary patient has an increasing amount of information on the indications for the use of different medicines. Therefore, the conclusions derived from the BENEFIT study summarised results, especially those concerning the last follow-up – after 11 years, have generated knowledge of vital importance to the patients. It was demonstrated that the patients who started their therapy earlier had a longer time to conversion to multiple sclerosis – by 2.7 years compared to the group with postponed treatment. The annualised relapse rate was significantly lower and the time to the next relapse was significantly longer in patients who received treatment early. Only 13.3% of individuals left employment immediately after they were diagnosed with multiple sclerosis and only 12.2% went on disability pension. The results of the BENEFIT 11 study, especially those relating to professional activity, support the idea of starting the treatment as early as possible and are important particularly to those patients for whom work is a value in itself. The knowledge derived from the BENEFIT 11 study that early interferon beta treatment provides a chance for maintaining professional activity, delays the conversion from the relapsing-remitting multiple sclerosis to the secondary progressive form of the disease and minimises the progression of disability, significantly affects the patient’s willingness to comply with the recommendations and treatment regimens, i.e. promotes patient adherence. This knowledge should also be the basis of communication with those individuals who will be diagnosed with multiple sclerosis and who will be asking questions about their future.

PL

Oczekiwania i potrzeby chorych związane z leczeniem stwardnienia rozsianego odnoszą się do poprawy szans na realizację założonych celów życiowych. Współczesny pacjent ma coraz więcej informacji na temat wskazań do stosowania poszczególnych preparatów. Dlatego wnioski z podsumowań wyników badania BENEFIT, a zwłaszcza ostatniej obserwacji – po 11 latach, przyniosły wiedzę mającą zasadnicze znaczenie dla chorych. Wykazano, że pacjenci, którzy wcześniej rozpoczęli terapię, wykazywali dłuższy czas konwersji do stwardnienia rozsianego – o 2,7 roku w porównaniu z grupą z odroczonym leczeniem. Wśród chorych wcześnie leczonych roczny wskaźnik rzutów był istotnie niższy, a czas do wystąpienia kolejnego rzutu – znamiennie dłuższy. Jedynie 13,3% osób zrezygnowało z pracy bezpośrednio po rozpoznaniu stwardnieniu rozsianego, a tylko 12,2% przeszło na rentę. Wyniki BENEFIT 11, zwłaszcza te odnoszące się do aktywności zawodowej, przekonują do jak najszybszego rozpoczęcia leczenia i są istotne szczególnie dla pacjentów, dla których praca stanowi wartość samą w sobie. Wynikająca z BENEFIT 11 wiedza o tym, że wczesne leczenie interferonem beta daje szansę na utrzymanie aktywności zawodowej, opóźnia konwersję z postaci rzutowo-remisyjnej do wtórnie przewlekle postępującej i minimalizuje postęp niepełnosprawności, znacząco wpływa na przekonanie chorego do przestrzegania zaleceń i schematów leczenia, czyli sprzyja adherencji. Wiedza ta powinna być także podstawą komunikacji z osobami, u których dopiero zostanie zdiagnozowane stwardnienie rozsiane i które będą pytać o swoją przyszłość.

Keywords

EN

expectations; leczenie; multiple sclerosis; needs; oczekiwania; potrzeby; stwardnienie rozsiane; therapy

Discipline

• MEDICINE: MEDICINE

• Journal: Aktualności Neurologiczne
• Year: 2015
• Volume: 15
• Issue: 3
• Pages: 119–123

Contributors

author

Andrzej Potemkowski

• Zakład Psychologii Klinicznej i Psychoprofilaktyki, Instytut Psychologii, Uniwersytet Szczeciński, Szczecin, Polska,

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• Document Type: review